A Protocol for the Secure Linking of Registries for HPV Surveillance

PLoS ONE 7(7), 2012

Khaled El Emam, Saeed Samet, Jun Hu, Liam Peyton, Craig Earle, Gayatri C. Jayaraman, Tom Wong, Murat Kantarcioglu, Fida Dankar, and Aleksander Essex

Abstract. In order to monitor the effectiveness of HPV vaccination in Canada the linkage of multiple data registries may be required. These registries may not always be managed by the same organization and, furthermore, privacy legislation or practices may restrict any data linkages of records that can actually be done among registries. The objective of this study was to develop a secure protocol for linking data from different registries and to allow on-going monitoring of HPV vaccine effectiveness.

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